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A discussion with Denise Silber, CEO of Basil Strategies, and Michael Seres, a UK "ePatient" coping with Crohn's Disease (see bios), about why it is important for empowered patients to attend eHealth conferences. Silber and Seres talk about her efforts to establish and fund ePatient Travel Scholarships so that more patients can attend the third annual Doctors 2.0 & You conference, which her company is hosting. The discussion also offers insights on what it means to be an ePatient.
The third edition of Doctors 2.0 & You, the must-attend annual healthcare social media conference will take place in Paris from June 6 to 7, 2013. This is the only international congress devoted to the understanding of how physicians use New Technologies, Web 2.0 tools, Social Media to communicate with other health care professionals, patients, payers, pharmaceutical companies, public agencies.
Unfortunately, one group that cannot afford to attend this conference is ePatients; i.e., empowered patients who are in the forefront of pushing healthcare into the Web 2.0 era!
To help rectify that shortcoming, Basil Strategies, which is hosting the conference, has established an ePatient Travel Scholarship fund to help defray the costs for selected ePatients from around the world to attend the conference. In order to collect donations to this fund, Basil Strategies has set up a project in MedStartr, which is a crowdfunding platform specifically designed for healthcare.
Questions/Topics to be Discussed
Define what you mean by "ePatient" and why you think it is important for ePatients to attend eHealth conferences such as Doctors 2.0 & You
Tell us more about the ePatient Travel Scholarships you have established. Why did you decide to solicit funds for these scholarships via MedStartr? Can you describe how MedStartr works?
Who should contribute to the scholarship and why? Will you recognize all contributors? How?
Given that there are so many eligible ePatients who would like to attend your conference, how will you choose which ePatients will receive scholarships? Who's eligible and how can eligible candidates apply for a scholarship?
Denise Silber, an American in Paris, and former pharmaceutical manager, has been involved in eHealth since 1995, managing the creation of the first medical web sites in France and participating in the many working groups on the theme of quality and ethics on the web: AFGIS, European Commission, French Ministry of Health, HAS, HON, HSWG, Internet Healthcare Coalition, Medcertain, WHO, URAC. In 2008, Denise Silber founded AQIS, the association for the Quality of Health Internet Sites.
Basil Strategies, Denise's company, is the founders of Doctors 2.0 & You known to many as THE international healthcare social media conference in Europe. Denise also teaches at Essec Business School. A Harvard MBA, Denise is President of PharMBA. Don't miss her blog.
On Jan 1, 2011, Denise was named to the Legion of Honor, France's highest civil decoration. You can follow her on Twitter: @health20paris and the conference on @doctors20
Michael Seres suffered with Crohns Disease and ended up with intestinal failure. He recently had to have a small bowel transplant, at Churchill Hospital in Oxford. Post transplant he is learning to eat again and is on a feeding regime that goes via a tube directly in to his new bowel.
"I inject myself 6 times a day with anti sickness drugs. Having the transplant was the hardest thing I have ever been through but it has given me the chance of having a normal life again. Being a patient isn't easy."